The headache from Friday night resolved by morning. We think it was just related to getting intrathecal chemo but not necessarily a CSF leak like she had last time. We’re just glad it went away on it’s own. The weekends are pretty quiet around here. All of the doctors stop by each morning but there’s no results on the CSF sample they took from Friday morning. Each time they do her IT chemo, they take a sample of spinal fluid and check it for cancerous cells. The specialty labs that perform these test are closed on the weekends so hopefully we get that result on Monday.

Shannon finished her 1st chemotherapy early Saturday morning. They took a blood sample to check the level of that chemo in her blood and then another one 24 hours later. That particular drug has to clear out of her system before she can go home. They’re giving her another IV drug similar to folic acid which helps to protect her body from the harmful effects of that chemo. The nurses call it her “rescue medicine.” They send the test for that drug level next door to that lab at Texas Children’s Hospital. I suppose their lab has the specific equipment needed for this test. It’ll probaby be Monday before we know the results on that test as well.

On Saturday and Sunday Shannon got the 2nd chemo drug. They gave it four different times spaced out 12 hours apart. This chemo drug has probably been the roughest for her so far. She has complained of slight headache, bone aches and feeling very weak. She also feel hot then later she feels cold. It’s back and forth. I think it’s just a sensation she feels because her temperature has been normal. Her temperature also feels normal to the touch. They’re giving her medications for pain, nausea and anxiety to help manage all of the side effects. Overall, she’s handling the treatments well and better than expected in my opinion. This is the girl that doesn’t even like to take a benadryl at home because of the way it makes her feel. She’s always said she’s “sensitive” to medicines. Considering how powerful these drugs are, from the pain medication to the chemotherapy, I think she’s doing great.