Hi Everyone,
Shannon has been diagnosed with
Early T-Cell Precursor Acute Lymphoblastic Leukemia (ETP ALL)
EarlyT-cell precursor acute lymphoblastic leukemia (ETP-ALL) is a highly aggressive subtype of T-ALL characterized by the abnormal expression of myeloid/stem cell antigens. The plan for her is to receive 3 to 4 rounds(6-8 cycles of A and B each) of chemotherapy and get into remission. Then, she will undergo a bone marrow transplant to completely replace her bone marrow with healthy marrow and keep the disease from returning.
Shannon has many friends and family that want to stay updated on the latest news regarding her health and treatment plans. This website will serve as a place for updates so that we can post one update that everyone has access to. This frees up time spent texting many individual numbers and also prevents us from accidently leaving people out. Please feel free to leave comments on each post/update. Shannon will be able to read all of your comments.
Donations can be made at this link:
https://gofund.me/f5bc6f7a
For those that want to make a more discreet donation or don’t want to use GoFundMe…we made our Cash App link available below.
Updates
July 18th
Rough start this morning in IR. They were much quicker today, 2.5 hours vs 4, but Shannon had an overall bad experience today. There was a different physician performing her intrathecal chemotherapy today. This particular doctor didn't seem as skilled as the...
July 17th
Late Update - Didn't post an update last night. Dr Sukumar and his Residents stopped by, he's the Oncologist/Hematologist rounding this week. Dr Abuasab is off and will be visiting family in Jordan. Good news: there's no cancerous cells in her CSF (Cerebrospinal...
July 16th
Not a whole lot happened today. Both the attending physician and the oncologist stopped by. All of Shannon's labs are in normal range. Her white blood cell counts is starting to drop but it's still within normal range. No fevers. No signs of infection. Shannon ate...
July 15th – 1st Intrathecal Chemo
No major events last night, other than a little bit of nausea. The night shift nurse gave her a PRN (As Needed) antiemetic (anti nausea) drug by mouth. It cleared it up and made her drowsy. We were up and down quite a bit last night. It seemed like every hour or two....
July 14th – Prayer From Monterrey, MX
Shannon tolerated her chemo last night and this morning with no issues, no side effects. She has eaten well and went for a walk, several laps, around the unit this afternoon. Both Dr. Fakess and Dr. Abuasab stopped by this morning. No news and they were both glad to...
July 13th
Today was a good day. Shannon had her 1st chemo infusion late last night and another one this morning. No issues with either infusion. She had no nausea and her pain is much better today. She probably had her best night of sleep last night. Dr Fakess (the...
July 12th – Chemotherapy Started
The first IV Chemotherapy medication officially began around 11:30pm. They gave her 3 different premeds to prevent nausea including one to protect her bladder. In general, most medications or their metabolites are eventually excreted thru the urine and some of the...
July 12th – Official Diagnosis
We've been anxiously waiting all morning for Dr. Abuasab to stop by. He showed up around noon with residents in tow. He has given Shannon a diagnosis of:Early T-Cell Precursor Acute Lymphoblastic Leukemia (ETP ALL). He said that 10 years ago the prognosis would be...
July 11th
Shannon was NPO since midnight last night for her line placement this morning. She slept pretty good last night. She showered this morning and was looking all pretty when they took her to Interventional Radiology for the line placement. I was thinking she'd only...
July 9th and 10th
This post will include events from yesterday, July 9th, and today, July 10th. Yesterday our daughter Jesslyn came to sit with Shannon while I was out running around. I had to go home to take care of some items at the house: Took the boys with me to get gas for the...
